Well, I finally received a call this week from N Council after the 4 un-returned calls over the summer holidays. They rang to tell me that the Inclusion Panel would be meeting on the 13th Sept and our case would be going through as all of the paper work had now been collected. The panel will meet first thing in the morning and they will have the decision back after lunch. He will call me after. They also said that they will give advice as well as naming a school. They apologised that Amira would not be joining any school for the start of the term but they hope to get the wheels in motion, as long as we are all in agreement about the school. I asked what happens what if I didn't agree but was told not to think about that now as they will take my views seriously and they do not like to go to appeal! God only knows, should I take that as positive or not??!!??
Well let's rewind slightly and let you catch up on other news!
Amira had her prescription changed from Melatonin (liquid) to Melatonin capsules then up to Chlorayl Hydrate (Sedative) I was very wary about moving to this it has a lot of side effects and is certainly not natural product like melatonin is, but I decided to try it, went for it and "drugged" my child to try and get some sleep! I have now tried it for over 2 weeks and can honestly say it is not for her, it has had no effect at all! I had better results with the melatonin capsules! Now back to waiting to speak to the paediatrician again to see what is next!
I have now taken a career break from work as I just couldn't physically manage anymore. I don't regret my decision but I am saddened by it. I miss my friends/colleagues, I miss the work I did and the responsibility I had, I miss organising an event and the buzz I got from the amount I raised and the smiles from the people who received the donation, I miss the contact I had with all the different members of the community, I miss adult conversations and a reason to get dressed in a morning. I may have been exhausted from it but I really did love it! However, I had to get my priorities in order and my children come first! That is why I don't regret my decision. It doesn't stop me from missing it though!
I am hoping that when Amira does finally start a school and now Tariq has started reception and is full time I will start to get my life back! I'm sure all mums have this feeling! A mixture of sadness and joy! I have just had a very extended summer holiday for Amira, 6 months and counting!!!
I am under no illusion that starting a new school is going to be extremely difficult for Amira and "breaking" her into a new routine will be frought with challenges but I am now in a stronger place to deal with them!...I hope!!!!
We have been out and about over the summer holidays and joined in with the Pathways 4 All Picnic in the Park! We all had a great day, Amira absolutely loved it! The new park was fantastic, safe and fully inclusive...absolutely perfect for us! The other parents/carers were lovely and when Amira stripped off completely to swim in a muddy puddle there were no tuts or judgements! Just acknowledgements that they had been there before! It was hilarious though when my sister was trying to catch her to get her clothes back in, Amira is very fast!!!
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